Older People Living with Cancer

Peer advocates supporting older people affected by cancer

Terms of Reference

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Advocacy on the Wards Project for Older People – funded by Big Lottery Silver Dreams Fund and Macmillan.

National Cancer Champions Board (NCCB)

Terms of Reference


1. Background


OPAAL is the Older People’s Advocacy Alliance, a national second tier third sector umbrella network with approximately 150 members. We are the only national membership organisation developing and promoting independent advocacy with older people.

Most of our members are providers of independent advocacy services for older people however we also have a number of organisations with a national brief to improve the lives of older people generally. We also have a small number of individual members mostly academics and consultants.

The Advocacy on the Wards Project

The AOW Project is an eighteen-month project funded by the Big Lottery Silver Dreams Fund and Macmillan.  The project Co-ordinator is Kath Parson, OPAAL’s Chief Executive who will oversee delivery of the project until the end of December 2013.  The project aims to develop peer volunteer advocacy schemes through our partner member organisations in five areas in England.  These pilot projects will cover rural and urban populations and be located in four different regions in England.  The projects will place older people at the centre of providing advocacy to people who have been affected by cancer.  This innovative project is to be supported by the National Advisory Group which will meet quarterly for the duration of the project.


2. Membership

The National Cancer Champions Board is a meeting of representatives from a variety of local, regional and national organisations, networks and forums from across the statutory and voluntary sectors in England.

This mix of people and organisations will provide the AOW with invaluable width and depth of knowledge and experience.

The group will comprise individuals whose work has its focus on any or all of the following: cancer, health and well being in older people, advocacy, carer’s, older people’s disability, and volunteering.

The National Cancer Champions Board will include:

  • The Project Leader
  • Four Representatives one from each of the local Cancer Champions Boards
  • A representative from Macmillan
  • Representatives from the Health Sector
  • Representatives from Academia- Research Institutions
  • A Peer Cancer Support advocate
  • An older person affected by Cancer
  • Representatives from National organisations/Networks
  • Other relevant professionals


3.  Purpose

The purpose of the National Cancer Champions Board is to bring together various “expert representatives” to:

  •  Help promote and advertise the work of the projects.
  • Advise on the general direction of the four Local Volunteer Advocacy Cancer Support pilots.
  • Make specific strategic recommendations for the successful delivery of the project.
  • Share the learning and outcomes of the project amongst the widest group of beneficiaries.
  • Ensure information about the project is disseminated as broadly as possible at local, regional and national levels.
  • Offer support to the National Project Manager.


4. Roles and responsibilities of the group members

The National Cancer Champions Board will consist of no less than 8 and no more than 25 members.  This will include roles of: Two Joint Chairs Hana Ibrahim and Kath Parson and the Secretariat which will be provided by Macmillan.  It is important that group members are aware of their individual and collective responsibilities listed below:

  • To attend all NCCB meetings.  If the agreed representative is not available a suitable deputy may attend.
  • Disseminating and publicising the work of the project through the members’ organisation and other contacts.
  • Ensure effective communication exchange between members.
  • Reading relevant background material prior to meetings when and where relevant.
  • Facilitating debates and working in partnership with other members to seek resolution to problems.
  • Ensure regular communication with the Project Co-ordinator.
  • To be a “champion” of the project.


5.  Meetings

Meetings will take place quarterly throughout the duration of the project and are on the following dates:

2012 – Tuesday 9th October

2013 – Tuesday 12th February

            Wednesday 8th May

             Thursday 29th August 

             Tuesday 19th November

 The meetings will be held in London, unless otherwise agreed by the group members.  The meeting will be scheduled to run from 11.30 am and will aim to finish at 2.30pm with time allocated for informal discussion over lunch (lunch will be provided).

Reasonable travel expenses for members attending will be met by OPAAL (UK) if members correctly fill out expense claim forms and return to Kath Parson the Project Leader.


6. Queries

Any questions or queries about the Advocacy on the Wards Project or the National Cancer Champions Group are to be directed to The National Project Lead Kath Parson on Kathryn.parson@btinternet.com or mobile 079 660 39797


Author: kathparson

Chief Executive of Older People's Advocacy Alliance (UK)

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