Older People Living with Cancer

Peer advocates supporting older people affected by cancer


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Meanderings of a Male Advocacy volunteer

In the second of two blogs from Dorset Macmillan Advocacy, produced for and published by BIG Lottery Fund last week, we hear from Bob Smith, a volunteer cancer advocate.

Bob Smith

recent report funded by the Big Lottery Fund revealed that men over 50 have a tendency to volunteer less than women of the same age. I think there are a number of reasons for this; for example, one is the fact that more men than women over the age of 50 tend to still be working, and therefore have less time available than their female counterparts. Also, many within this age group were brought up in an era when volunteering was seen as more of a woman’s domain; thank heavens this is no longer the case!

Volunteering can be so rewarding for those who give their time freely. We all have experiences, talents, and skills that can be used for the benefit of others. None of us know when we may need the help of others and it’s great to play our part whilst we can.

I have generally tried to help others if I have the opportunity but never more so than since I contracted cancer for the first time in 2007. By 2012 I had had the illness three times, plus a stem cell transplant. I was in remission again and looking for somewhere that I could really make a difference. I heard that a new project providing one-to-one advocacy support for older people affected by cancer was looking for recruits  so I applied along with my wife, Maddy, and we were both accepted.

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Being a volunteer advocate enables me to use my experiences to help others struggling with their cancer journey. A diagnosis is devastating to the patient, their loved ones, and their friends. Any of these people might need help and support. Having someone who is supportive, impartial, and empathetic (not just sympathetic) can be invaluable, and this can be especially relevant to the older person.

Advocacy doesn’t just benefit the person affected by cancer; I have learnt so much about how to support people with so many different needs. Each of my advocacy partners has been different and taught me so much. They have ranged from very positive to depressed and helpless to very capable, but all in need of someone to confide in.

Being a male advocate will obviously involve supporting men and women partners. However, certain types of cancer are very personal to a man (as are some to a woman). Having male volunteers also adds a different dimension to the advocacy;. a man affected by cancer might- open up more to another man as they will have had similar life experiences and views. Some say they can treat you more as ‘an impartial brother’.

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I would very much recommend that other men who have had experience of cancer volunteer as advocates. The emotional rewards are enormous and it’s a real blessing to be able to help others using the first-hand knowledge you have. I have every intention to carry on as an advocate and am finding new ways to help cancer patients in other ways as well. Cancer advocacy is the most important volunteer role I’ve had to date.

Dorset Macmillan Advocacy are parallel partners in Older People’s Advocacy Alliance (OPAAL)’s Cancer, Older People and Advocacy project which is funded through the Big Lottery Fund’s Silver Dreams programme.

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Encouraging more men to volunteer

Last week Cancer, Older People and Advocacy programme co-funder BIG Lottery Fund published two guest blog posts we provided for them. In case you missed them here is the first. The second will follow tomorrow.

BIG Lottery Fund’s recent Foresight report revealed that men volunteer far less than women. In the first of two blogs, we hear from a spokesperson at the Dorset Macmillan Advocacy about Graham, a male advocacy volunteer who supports people living with cancer…

At Dorset Macmillan Advocacy, both our steering group and our team of volunteer advocates have good male representation, although we don’t manage to recruit as many men as we do women.

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When three former service users were asked if the gender of their advocate was important to them, all three said it did not make a difference and that they simply wanted a good one. Of course, in some cases people might actively want an advocate of the same gender; for example, if they had a gender specific cancer. It is true that some of our male volunteers do seem to engage with their male advocacy partners in a particularly effective way. One partner even referred to his as being ‘like a brother’.

Graham-Willetts

Graham Willetts is on the steering group and Board of Trustees. As someone living with cancer himself, Graham was keen to help people in the same situation and joined the advocacy a year after his diagnosis. Having been an active member of his Parish Council for many years, he wanted to concentrate on developing cancer advocacy in Dorset. Graham has a professional background as a social worker, working in particular with disabled and older people.

Another reason Graham wanted to get involved was that because he was retired he missed the personal contact he used to have with people and the opportunity to challenge bad practice. Although he has learned how to be assertive in relation to his own care, he feels the nature of the disease means that even confident people can struggle and that it’s really useful to have someone else at appointments to ask questions.

Like Graham, volunteer advocates are generally motivated by wanting to help someone have a better experience than they themselves might have had. There are benefits for both parties and volunteers often report feeling ‘a lift’ as a result of their role.

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Looking back, Graham feels that without the support he received, and his own ability to research his condition, he would have been ‘in a mess’. Having more male volunteer advocates join our service can only be a good thing and Graham and our other male volunteers would encourage other men to join.

Dorset Macmillan Advocacy, are parallel partners in Older People’s Advocacy Alliance (OPAAL)’s Cancer, Older People and Advocacy project which is funded through the Big Lottery Fund’s Silver Dreams programme.